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Alexander James Plotas died on September 21st 2011 at 13 months of age due to respiratory complications from a severe form of immune deficiency, after a successful Bone Marrow Transplant (BMT).

Alexander was a smiley, magnetic and determined little boy with enchanting blue eyes who received his BMT at Children’s National Medical Center in Washington, D.C. under the care of a devoted and talented medical team.

While waiting for his new immune system to activate, pneumonia set in. After 2 weeks in the ICU, the complications were too severe for Alexander to overcome.  Prior to that, Alexander’s journey included 160 days in the hospital and multiple infection-related obstacles he overcame which would have been catastrophic to any adult.

While Alexander didn't have words yet, he said a lot to his parents, his loving big sister and his medical caregiving family. Here are the things we heard from him along the way that we carry forward with us in the work of BE GREAT to help all the other Alexanders out there.

Smile a lot. Be happy. Don't complain. Take it as it comes.
It's a beautiful day every day. Press forward and stay calm.
Remain hopeful and trust that things will work out.
Look into my eyes and see that I am NOT afraid.
Take courage from me and be strong.
Things may get darker before the light shines through.
Enjoy each day without expectation.
Smile a lot. Be happy.


© Copyright 2012 BE GREAT Alexander’s Foundation for Children, Inc. All Rights Reserved